research explained Archives - Rare Genes Movement

A child's hand reaching toward a glowing DNA helix at sunrise… featured image for the Research Explained post on why rare disease research matters, by Rare Genes Movement.

Research, Explained

Why Rare Disease Research Matters: Pushing the Frontiers of Medicine

Rare diseases affect 400 million people worldwide, yet nearly 95% still have no approved treatment.…

Rare Genes MovementJuly 17, 2026

A clay-style scientist studies a glowing pair of lungs beside a microscope… featured image for the Research Explained post on rare childhood lung disease and the new tools helping scientists understand it.

Research, Explained

Science Is Learning More About Rare Childhood Lung Diseases

Rare childhood lung disease is hard to study for the same reason it is hard…

Rare Genes MovementJuly 17, 2026

A clay-style family sits together on a couch in warm lamplight with a medical folder set aside… featured image for the Research Explained post on rare disease mental health and the impact a diagnosis has on the whole family.

Research, Explained

Rare Disease Is More Than a Medical Diagnosis

After a rare diagnosis, almost every conversation is medical. But research shows the hardest parts…

Rare Genes MovementJuly 17, 2026

A clay-style father holding a briefcase stands at a fork in the path holding his young son's hand at sunrise… featured image for the Research Explained post on rare disease quality of life and the 70 percent of caregivers who reduce their careers.

Research, Explained

Rare Disease Impacts More Than Health

Roughly 70 percent of patients and caregivers cut back their professional lives because of rare…

Rare Genes MovementJuly 14, 2026