Our Mission
It has taken the families of those diagnosed with rare diseases to get our community this far.
It will take the help from others to get us the rest of the way.
Our hope is for a brighter future for those affected by a rare disorder.
Researching tangible treatment options in our children's lifetime needs to be the priority.
We will make strides to be the voice for those fighting silently everyday with a rare disorder.
Medical and technological advancements have made stem cell treatment, gene replacement therapy and other treatments a real viable option for many genetic disorders in the near future, but without the awareness and funds raised for any one individual rare disorder, the research will not and cannot be conducted to research a treatment.
