Rare Genes Movement

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Candid 2025 Platinum Seal of Transparency badge, indicating Rare Genes Movement has achieved the highest level of nonprofit transparency and accountability.

CONTACT

info@raregenesmovement.org

Rare Genes Movement is a 501(c)(3) nonprofit organization. Contributions are tax-deductible to the fullest extent permitted by law.

EIN: 84-4654027

On The ‘Gram

🌟 MICRO-GRANT RECIPIENT SPOTLIGHT: Meet Rylee 💚

Rylee is a bright, determined toddler living with a RAB11B gene mutation — a rare neurodevelopmental condition that affects mobility, muscle tone, and overall development. Even with the challen

We’re officially Platinum! 💎
Candid’s highest transparency rating means one thing: accountability you can see. Every story we tell, every micro-grant we give, every connection we build—it’s all documented, open, and driving c

💙 MICRO-GRANT RECIPIENT SPOTLIGHT: @curepogzdisorders!

We’re honored to spotlight one of our recent Rare Genes Movement Micro-Grant recipients: the Cure POGZ Foundation!!

Founded by Swapna in honor of her son, Ved — one of only a smal

🧡 We’re at Community Park today for Pointsgiving! Come by, say hi, and join the fun — coloring cards for kids in hospitals, photos with our affirmation props, and a whole lot of gratitude in the air. 🌟

📍 Community Park, Point Pleasant