Volunteer With Us
A small act of kindness can create a ripple of hope.
Why Volunteer?
Every helping hand makes a difference. Whether you love events, storytelling, photography, or behind-the-scenes support — there’s a place for you at Rare Genes Movement. Explore volunteer opportunities below and see how your time and talents can bring hope to rare families.
Event-Based Volunteering
Community Events
Help at Rare Genes booths — greet visitors, assist kids with crafts, and share materials at awareness events.
Photography & Videography
Capture joyful moments and the heart of our community at events.
Awareness Days
Support events like Rare Disease Day – hand out flyers, post online, and raise awareness in your community.
Remote & Ongoing Volunteering
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Help us spread awareness through posts, graphics, and engagement.
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Help us write and share Rare Spotlight stories that connect families.
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Assist with campaigns, donor outreach, or online raffles — every effort fuels change.
Skill-Based Volunteering
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Help identify funding opportunities and draft impactful applications.
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Create visuals, flyers, or templates that share our mission.
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Help organize micro-grant submissions, track data, and prepare reports.
Leadership & Specialized Roles
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Join our leadership team as Treasurer, Secretary, or Fundraising Chair.
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Host card-making drives, match employee donations, or sponsor events.
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Represent Rare Genes in your community — share resources with schools, clinics, and local networks.
Ready to make a difference?
Whether you can give an hour or a season, your time matters. Fill out our volunteer interest form and join a community that’s making the rare feel less rare.