0

Annual Report

Download our 2021–2024 Annual Report (PDF)

RGM-LOGO-footer.png

SITEMAP

Our Purpose

Rare Disorders

Journey

Initiatives

Donate

Annual Report


CONTACT

info@raregenesmovement.org

Rare Genes Movement is a 501(c)(3) nonprofit organization. Contributions are tax-deductible to the fullest extent permitted by law.

EIN: 84-4654027

On The β€˜Gram

πŸ’™ Over 70% of rare diseases begin in childhood. Behind every number is a child, a family, and a journey most of us will never see.β € β € Help us make the invisible visible: share this post, raise awareness, and stand with the rare community. βœ¨β € β € πŸ‘‰ Le
πŸ’› International WSS Awareness Day is personal to us at Rare Genes Movement. Our journey began when our co-founder’s son was finally diagnosed with Wiedemann–Steiner Syndrome after years of searching for answers. That diagnosis brought c
πŸ’› Today we’re proudly celebrating International Wiedemann–Steiner Syndrome (WSS) Awareness Day! WSS may be rare with only around 1,500 people diagnosed worldwide but the strength, joy, and brilliance of this community shines so bright.