Privacy Policy 1 — Rare Genes Movement

Annual Report

Download our 2021–2024 Annual Report (PDF)

SITEMAP

Candid 2025 Platinum Seal of Transparency badge, indicating Rare Genes Movement has achieved the highest level of nonprofit transparency and accountability.

CONTACT

info@raregenesmovement.org

Rare Genes Movement is a 501(c)(3) nonprofit organization. Contributions are tax-deductible to the fullest extent permitted by law.

EIN: 84-4654027

On The ‘Gram

🌟 MICRO-GRANT RECIPIENT SPOTLIGHT: Meet Rylee 💚

Rylee is a bright, determined toddler living with a RAB11B gene mutation — a rare neurodevelopmental condition that affects mobility, muscle tone, and overall development. Even with the challen

We’re officially Platinum! 💎
Candid’s highest transparency rating means one thing: accountability you can see. Every story we tell, every micro-grant we give, every connection we build—it’s all documented, open, and driving c

💙 MICRO-GRANT RECIPIENT SPOTLIGHT: @curepogzdisorders!

We’re honored to spotlight one of our recent Rare Genes Movement Micro-Grant recipients: the Cure POGZ Foundation!!

Founded by Swapna in honor of her son, Ved — one of only a smal

🧡 We’re at Community Park today for Pointsgiving! Come by, say hi, and join the fun — coloring cards for kids in hospitals, photos with our affirmation props, and a whole lot of gratitude in the air. 🌟

📍 Community Park, Point Pleasant