Amplifying Rare Voices. Raising Awareness. Providing Support.
Rare Genes Movement raises awareness of rare genetic disorders and provides meaningful support to families on this journey. We exist to amplify voices, build connections, and fill gaps where resources are limited — so no family faces rare disorders alone.
What Drives Us
At Rare Genes Movement, we believe no family should face a rare genetic disorder alone.
Through awareness, storytelling, advocacy, and inclusive projects, we work to make the rare feel less rare - helping families feel seen, supported, and empowered.
Because every voice matters. And no one should feel invisible.